West Coast Retinoblastoma Support Group

The West Coast Retinoblastoma Support Group is a thriving regional community of individuals and families affected by retinoblastoma who gather—in person and online—to learn from, advocate for, and support each other.

We welcome RB patients, survivors, caregivers, and professionals from all over the world. However, please note that our focus is regional. Our resources and events will be most relevant for residents of British Columbia, Alberta, the Yukon, and any other area referred for treatment to BC Children’s Hospital and Vancouver General Hospital.

Let's connect! For more information about upcoming events or to get involved, email us at westcoastrbsupport@gmail.com or follow us on Facebook or Instagram.

Erin Parker

Erin is a book editor and parent of two silly, energetic boys. Her youngest son was diagnosed with unilateral retinoblastoma and his right eye enucleated in the spring of 2025. Ever since, Erin has been passionate about sharing her family’s story to spread awareness about the importance of early detection and collaborating with other parents, survivors, researchers, and medical experts to strengthen the incredible RB community. Erin also volunteers with the Canadian Retinoblastoma Research Advisory Board (CRRAB) and Know the Glow, as one of their Canada Ambassadors.

Chelsea Vito

Chelsea is a mom to two incredible children and holds a Bachelor of Business Administration. Her RB journey started when her son, Dominic, was diagnosed with bilateral retinoblastoma at two years old in April of 2025 during a routine eye exam. His diagnosis sparked her passion for advocating and spreading awareness about the importance of eye health for early detection and treatment. Chelsea is also a Canadian Ambassador for Know the Glow.

Read more about Dominic’s journey at Dominic’s Glow Story - Know The Glow.

Katheryn Maarsman

Katheryn is a unilateral retinoblastoma survivor who had her right eye enucleated at Vancouver General Hospital in 1978. As a survivor, she is passionate about bringing together retinoblastoma survivors, families, and caregivers from all walks of life to share their stories, experiences, and journeys. Her hope is to build connections, foster understanding, and remind others that no one has to navigate their retinoblastoma journey alone.

Katheryn is also a proud mother of two adult children and an active community volunteer. She serves as a board member of Volunteer Abbotsford and volunteers at Abbotsford Canucks games and concerts at Rogers Forum. Through both her advocacy and community involvement, Katheryn is dedicated to making meaningful connections and making a positive difference in the lives of others.