Share Your Story

Your retinoblastoma story can make a meaningful impact, thank you for sharing!

May we share your story publicly?

Name

First Name

Last Name

Introduction

Who you are and why you're sharing your story.

How my journey began

When did your journey with retinoblastoma begin? Were you or a loved one diagnosed, and at what age? What were the initial signs or symptoms?

Diagnosis

How was the diagnosis made (e.g., a routine check-up, symptoms noticed)? What were your or your family’s immediate thoughts and feelings? How did you learn about retinoblastoma as a condition?

Treatment experience

Describe the medical care, surgeries, or therapies received. Talk about the challenges and successes during treatment. If applicable, share how the medical team supported you or your family emotionally and physically.

Life after treatment

If you or a loved one is a survivor, share how you adapted to life after treatment. Mention any ongoing care or monitoring required. Reflect on how retinoblastoma has impacted your life or future goals

Lessons learned

Insights about resilience, hope, or advocacy. Advice for families facing a new diagnosis. What you wish you had known at the start of your journey.

Words of hope and encouragement

Acknowledge the struggles but emphasize the strength you’ve gained. Share a message of hope for those still in the fight. Highlight the importance of community and support.

Share Your Story

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