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Canadian Retinoblastoma Society

The Canadian Retinoblastoma Society (CRBS) is a federally incorporated charitable organization. We are run by a team of committed volunteers for the benefit of Canadians affected by retinoblastoma. We are the only charity in Canada dedicated exclusively to education, advocacy, and support for Canadian retinoblastoma families. Everyone on our Board of Directors has a personal connection to retinoblastoma.

While not directly affiliated with any particular doctor, hospital or program, the CRBS is proud to count many of Canada's retinoblastoma specialists as members. We maintain an open relationship with all of these professionals and collaborate with them on many projects.

Retinoblastoma Family Gathering

The Society is co-hosting a Family Gathering for all members of the retinoblastoma community (parents, children, adult patients/survivors) in Toronto on Saturday afternoon, January 26, 2019. Attendance is free. Click here to register and to get all the details. The Family Gathering is being held in conjunction with an RB patient engagement research project, called CRRAB being held that same weekend. Please attend, or for questions:


We recently lost one of the co-founders of the Canadian Retinoblastoma Society. Catharine Ramsey will be sorely missed. Donations to the Catharine Ramsey Memorial Fund would be gratefully accepted through our partners at