Is there a topic you’d like us to cover in an upcoming virtual gathering? Let us know!
2024 Upcoming Events
All events are free! Please pre-register for the zoom links.
Eye loss community meetup
Saturday, 4 May 2024 at 11:00 AM EST
CNIB Community Hub
1525 Young St. Toronto, ON
Have you lost an eye, or had an eye removed? Do you wear an artificial eye? Are you interested in meeting up with others who know what it's like to live with eye loss? Join us for a friendly meet up to share our stories and experiences.
This meetup is co-hosted by: Canadian Retinoblastoma Society, 1icollective, Striowsky Prosthetic Eyes
Click HERE to register
Annual Retinoblastoma Family Picnic
Saturday June 8, 2024 (rain or shine)
11am to 1pm EST
Marie Curtis Park @ 2 Forty Second St.
Eye loss community meetup (virtual)- Fall season (date tbd)
Virtual Gathering: RB genetics with special guest speaker - November (date TBD)
Past Events
Virtual Gathering
Thursday February 29, 2024
Parent experience story with Lindsey Robinson, followed by a group discussion for Parents, patients and caregivers.
Eye Loss Community Meetup
People who relate to the experience of eye loss gathered in person for a friendly meetup to share our stories and experiences.
November 18, 2023
CNIB Community Hub @1525 Young St. (Toronto)
Virtual Gathering
September 28, 2023
Navigating support for students with vision loss within the Ontario Education System.
Guest speakers:
Jennifer Vastagh, Vision Teacher Specialist at Waterloo Region School Board
Beth Conley-Edwards, Educational Coordinator and Consultant, Vision Resource Services and Outreach Programs at W. Ross Macdonald School
Annual RB Family Picnic
June 3, 2023
11am to 3pm EST
Marie Curtis Park, Etobicoke
Kids Virtual Gathering
April 29, 2023
10am to 11am EST
March 23, 2023
Annual General Meeting and Volunteer Information Session
February 27, 2023
Virtual Gathering
Topic: Patient and Caregivers
January 28-29, 2023
2023 Retinoblastoma Research Symposium (Toronto, ON)
Jan 28 - CRBS Survivor Panel
Jan 29 - CRBS 20th Anniversary Celebration
September 25, 2022
Topic: Psychological and emotional outcomes for Retinoblastoma survivors
Speakers:
Dr. Pam Mosher, Psychiatrist / Psychosocial oncologist at Princess Margaret Cancer Centre
Molly Hammerberg, Retinoblastoma Survivor
June 4, 2022
Retinoblastoma Family Picnic
We were so happy to host our first in-person event since the pandemic. A big thank you to everyone who helped make this event possible and to everyone who attended: long-time CRBS Members and new RB families too. It was great to see everyone on this beautiful sunny day.
April 2, 2022 (virtual)
Annual General Meeting and Presentation by Certified Child Life Specialist Morgan Livingstone
Click HERE to see the presentation.
February 17, 2022
Community Call - Survivor Stories
January 15, 2022 (virtual)